Category : Ailments & Diseases

5 S.T.E.P.S. to Being Your Own Patient Advocate

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Cristy Kessler should be dead. The fact that she’s not is because she took charge of her own medical care. When she took it upon herself to find out why she had spent her lifetime battling pain and illness, Kessler embarked upon a journey of discovery in which she endured multiple treatments and procedures that resolved some, but not all, of her issues. Finally, armed with a diagnosis of multiple autoimmune diseases, she took charge and, with the help of a powerful team of doctors, Kessler identified the treatment that could save her life, a treatment denied by her insurance company and prohibited in the United States by the FDA. As Michael Seres, author of the blog, “Being a Patient Isn’t Easy,” and a transplant survivor himself, says in the Foreword, “With her book, she has been able to articulate in a very simple way the critical steps that every patient living with a long-term condition should abide by. She writes with complete honesty and lovely touches of humour….this is a book every single patient should read at least once. And, if you are a clinician, then this should be on your bookshelf or on your laptop as a constant reminder of the paths and decisions…patients have to take.” Throughout her medical journey, Kessler developed the skills and strategies necessary to act as her own patient advocate, which, in the end, saved her life. Speaking directly to her readers, Kessler describes the five STEPS toward taking control of your health care with the assistance and support of a network of medical experts, family, and friends. Sensibility. Kessler urges you to pay attention to what your body is telling you and to record and describe symptoms carefully so that the doctor knows everything necessary for appropriate care. Most importantly, she says you must refuse to let anyone—even a doctor—dismiss your symptoms. Teamwork. Kessler urges you to take full responsibility for leading your team of doctors to make certain they are all working together, not at cross purp

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